After the Fontan
How Fontan patients fare in the long run
GET EASY-TO-UNDERSTAND INFORMATION ON
The report on early and late outcome after the Fontan repair for complex congenital heart defects like Tricuspid Atresia, Pulmonary Atresia, HLHS and Single Ventricle conditions.
Finding and reading your report helped me quite a bit. I thought the coverage of the condition and circumstances behind each predicted outcome where quite informative and helpful. I appreciate the "English" version of this text, too. I think you did a wonderful job. I even gave our school teacher my copy to take home and read so she could understand the condition. She had less questions after reading it. I think that says a lot. -- Kim ParadiseMy husband and I have read your report thoroughly. Overall we thought the report was very informative and written in terms that were easy for us to understand. -- JuliaDear Dr. Sivasubramanian: Thank you for providing your report "After the Fontan. It was very complete and very helpful. Thank you for a very useful and much needed report. -- Shelly SamplesDr. Sivasubramanian: I used your report as a reference for a paper on one of my pediatric patients. It was one of the most informative sources I found on the Fontan operation and its effects, and therefore have no criticisms at this time. Thank you for the report. -- Karl Stempel, Student NurseDear Dr Sivasubramanian, I could not come up with any specific parts of the document that need improvement - it's a great, informative, easy to follow report. -- Rich BiharyThank you so much for the e-book. I found it very informative. This is the first information I have been able to understand. Thank you again. Keep up the good work! -- Debbie TaylorDr. Siva, I felt like all the information was very understandable. I was simply looking for easy to read information to help me understand the surgery. -- Cindy ShillerDear Dr., Frankly, I can't get enough information. Your report was helpful to me and am so thankful that you do what you do to help lives like mine. There isn't a whole lot of info out there on this topic!! I found it quite adequate..scary in spots unfortunately but very informative. The long and short of it is thanks so much for all the time you put into this. I would imagine it's a lot!! Keep the info coming Dr. It's much appreciated!! Thanks again!! -- Jane MontebiancoThank you for your report it was very informative. The report helped us feel more comfortable. -- EricDear Dr. Sivasubramanian, there would be nothing I would want to see changed in your report. It was very informing. thank you. -- sharon woods"Dear Dr, We found your report to be very informative and heartbreaking at times with some of the outcomes and prediction- we are interested in the PLE situation. What is the prognosis, what is the best treatment to keep it at bay- thank you for your research- God Bless- -- Susan ZinsDr, I really enjoyed the Fontan report and am looking forward to the update. Thanks so much!" -- RobinI felt that the fontan report was very thorough and detailed although it would be next to impossible to get more specific as there are many defects and many so rare! I find the report very valuable for friends and family to read for themselves. So many of us parents struggle to explain that our children are not "all fixed" even if they look very healthy and that they are not promised no further complications and no further surgeries etc. -- Janet HofWe found all the information you sent to us was very informative. We soon came to an understanding of what was going to take place and we soon found peace. Thanks for educating us on what to expect. -- Linda & Ruben SantosContinue your excellent work. It is a good booklet for parents and doctors as well. -- N.MuraliDear Dr Sivasubramanian, Overall we would your publication very readable and extremely useful. -- James McAllisterWe treasured the info from your report, we felt you covered all aspects of the Fontan. Thank you for keeping us informed. -- Judith and Jonathan NicholsDear Doctor, (sorry, but my english is not that good....) We've learned a lot from reading your report. It was written in a way that even we could understand it. You have no idea how much support you give us by sharing the information you've gathered with your research . Thank you! Sincerely, -- Stefan en Yvonne.I found your report extremely well written. I found the area of complications of the bdg wounderfully wrote. I have spent months researching things on the web. I have printed up many story,articles,data, Yours has been my favorite. -- The ValleesDear Dr Siva, Just want you to know I think your "After the Fontan report" is amazing!! I really appreciate all the details, I think you answer difficult questions that all parents want to know. Please continue to provide as many statistics and detailed info as possible. Keep up the great work. It is very important to us parents of children with CHD. Sincerely, -- Beth KoteckiDr.Sivasubramanian Sivasubramanian, Thank you so much for keeping me informed about the Fontan proceedure. Originally, I requested it as an information tool regarding this surgical procedure. I found your booklet to be of much help. It helped me to understand the condition and the Fontan in a complete manner. Thanks again. -- Karen Cofino RNDr. Sivasubramanian: I found the information in your report After The Fontan to be extremely informative. Your report entitled After the Extra-Cardiac Fontan was even more helpful. Obviously we are scared, but I am an optimist, and I believe that everything will be OK, its just the uncertainty that is unnerving. Your reports are most helpful in removing some of the uncertaintly. Thanks so much. -- Pope McLean, Jr.Sir, Your report "After the Fontan" was most informative. In fact, this was about the only real information I could find that gave me any idea of what the future might hold. Thank you so much for making this information available to the public. -- Marsha PasciakThe topic was thoroughly covered and the paper well-written. I don't know how you manage to write, do research, and communicate with subscribers on top of doing surgery and taking care of patients--but I'm glad you do. You have my respect and admiration. -- Eve BradshawI found your report extremely helpful. The information on the newer developments were very useful. The survival rates offered for both were of concern yet I am glad they were included as they were more encouraging than other material I had read. I want to thank you again for helping me and my entire family through a difficult time. The report helped us explain things more clearly to family and friends. Thank you, -- Mary-Kay Caler